Love with care at AIDS haven
3/8/2005 16:50
"I need to make more money to buy nutrients for her and to put aside some
cash for my son who had to quit middle school and who is not trained for any
job," he says. With free treatment for his wife, Ding now feels money may be
less of an issue after all. "We're on very good terms with the doctors and
nurses. In the evenings, we often play cards together," he says. Ding says he
never used to be able to remember his wife's birthday until last year. "We were
both caught by surprise when all the doctors and nurses crowded into the room
and reminded me it was my wife's birthday." Ding says that for the first time
in her life, his wife was given a bouquet of flowers and had candles lit for her
on a birthday cake. "She was as excited as a child. She sang songs to thank
everyone and we both cried at the end. After that day, she had smiles on her
face again." A pioneering AIDS activist, Guo says he feels both contented and
troubled with the events of the past year. "I'm so happy to see the patients
feel at home here," he says. "As long as I'm still at the job, I'll do whatever
I can to make it thrive." Renovation of the former SARS wards into an AIDS
community cost 1.5 million yuan which the hospital raised itself. "The patients'
treatment and medication are financed by the government, and the hospital pays
for their lodging," he says. Relocation of the hospital's AIDS wards,
however, led to praise and criticism throughout China. Although officials
with the Shanxi Provincial Health Department praised Guo's move as a
"courageous" and "effective" attempt in building an AIDS community, many others
criticized him for intentionally differentiating between AIDS patients and
others. An article on www.tom.com, a leading
Chinese Internet portal, reported that China's most outspoken AIDS campaigner
Gao Yaojie was critical of the move. Gao was one of the first physicians to
bring AIDS to public attention in China. "It's wrong and discriminatory to
isolate AIDS patients from others," Gao, 78, was quoted as saying. Gao says
the practice adopted by health authorities in Central China's Henan Province was
better. "At what we call the 'Sunshine Homes' in many AIDS-hit villages there,
the patients get free treatment at local clinics without having to leave home,"
Gao was quoted as saying. Henan, a largely agricultural province with a
population of 93 million, had the country's worst AIDS outbreak when a large
number of poor farmers were infected by the HIV virus when selling blood to
illegal dealers in the years before 1995. Official statistics reveal that 11,844
people have been confirmed HIV-positive in the province, and 2,026 children have
been orphaned by the death of AIDS-infected parents. As many hospitals refuse
to operate on HIV carriers, some patients try to conceal their disease in order
to get timely treatment. "This increases the risk for HIV transmission in
operating rooms," Guo says. According to National Ministry of Health figures,
there are 840,000 HIV carriers on the Chinese mainland, of whom 80,000 suffer
from AIDS. An assessment report on China's AIDS prevention and control released
by the ministry last year showed HIV cases have now been reported in every one
of the Chinese mainland's 31 provinces, autonomous regions and
municipalities. Guo says he had decided to relocate the AIDS wards to avoid
cross-infections from tuberculosis and hepatitis patients who were also in the
infectious diseases hospital. Many AIDS victims actually die from other
infections rather than HIV, he says. "Many AIDS patients at our hospital's
headquarters dared not to go out, for the fear that they might bump into someone
they knew. Green Harbor is away from public attention and they feel more at ease
here where everyone is equal," he says. According to the hospital's
statistics, seven AIDS patients died between 2002 - the year the hospital
received the first case - and mid-2004. Green Harbor, founded in July 2004, has
received more than 80 patients to date, only two of whom have died. "AIDS
treatment is more than medication," Guo says. "Affection, care, moderate
exercises and psychotherapy are equally important. These are what Green Harbor
is offering while most traditional hospitals cannot." After Green Harbor was
established, Guo and his colleagues also began working to dispel local people's
fear of AIDS. "We received a cold welcome when we first moved here," says
Qiao Jiping, manager of the ward. "Barbers in the village refused to cut the
hair of patients and even storekeepers didn't dare to let the patients in,
fearing they would lose all their other customers." But when they saw how
little the difference was between the patients and themselves and how fast many
of them recuperated and left, most villagers became less scared. Some even
dropped in by for a brief visit from time to time. Today, four doctors and
seven nurses work full-time at Green Harbor, all on their own
initiative. "Before the AIDS community was established, the management of the
hospital asked if anyone would voluntarily work here. To our surprise, almost
everyone asked to come," says Qiao. "So we selected the best. They're all on
very good terms with the patients." The cozy environment has not just helped
the patients recuperate, but taught them to love and care for others as
well. Earlier this year, China's Red Cross received a letter from Linfen:
"We're AIDS patients being treated at the Green Harbor AIDS Community ... We
want to make our humble contributions to the people affected by the recent
Indian Ocean tsunami," it read. Twenty-one patients chipped in, donating 20 yuan
each. Guo says the donation, a voluntary act, had moved him to tears. When
asked about the future of his AIDS community, Guo says he would like to expand
the wards to accommodate more patients and to send all staff members to Beijing
for intensive training on AIDS treatment and prevention. "I have yet another
dream," he says. "If China sets up a surgical center exclusively for AIDS
patients some day, I'll open a surgical ward at Green Harbor,
too." (Xinhua)
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